Columnist Connie Chandler shares three things in her life with SMA that she thinks someone who might want to spend time with ...

This Halloween, an 11-year-old living with SMA named Dash will be trick-or-treating in a custom wheelchair costume inspired ...

Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.

In getting ready for the day, columnist Connie Chandler's caregiver helps her look good on the outside, but Connie's attitude ...

Scholar Rock is once again seeking approval in Europe for its muscle-strengthening drug for SMA, already launching in the U.S. as Isembyld.

The arrival of a new night weekend nurse has given columnist Ari Anderson reason to believe that he's now on the path of ...

England launched a new NHS newborn screening initiative to test babies for SMA, starting regionally in the West Midlands. SMA is a rare genetic condition causing progressive muscle weakness due to the ...

Columnist Sherry Toh may be waiting to try Isembyld, but the new SMA treatment should still be made accessible quickly, she ...

Muscle regeneration, the benefits of a specialized diet, physiotherapy, and assistive technologies are among top priorities for spinal muscular atrophy (SMA) research identified by patients, ...

New research reveals that the front and back parts of the brain develop independently from completely separate progenitor cells. This discovery helps explain how SMA affects the hindbrain and allows ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Throughout my life, I’ve experienced a certain kind of loneliness ...

Children and adults with SMA, along with their caregivers, experience clinically relevant mental health symptoms. Caregivers of patients with SMA type 1 exhibit the greatest psychological burden.