Four-day global conference will spotlight emerging therapies, artificial intelligence, genetic medicine, clinical trial ...

Annual campaign gives shoppers an opportunity to turn everyday purchases into meaningful impact for people living with muscular dystrophy, ALS and related neuromuscular diseases. NEW YORK – Wednesday, ...

Until the 1980s, little was known about the cause of any of the forms of muscular dystrophy. In 1986, MDA-supported researchers identified a gene on the X chromosome that, when flawed (mutated), ...

In Duchenne muscular dystrophy (DMD), muscle weakness selectively affects proximal muscles (close to the trunk) before distal (away from the trunk) muscles, and the legs before the arms. Additionally, ...

This webinar will present findings from a planned interim analysis of the Phase 3 FORTIFY trial, a randomized clinical trial evaluating the investigational therapy BBP-418 in individuals with ...

You don’t have to navigate your neuromuscular disease journey alone. As a member of the MDA Community, one of the many ways you can connect with others and share your personal story is by joining an ...

The word myopathy means “disease of muscle.” More specifically, myopathies are diseases that cause problems with the tone and contraction of skeletal muscles (muscles that control voluntary movements.

CHICAGO, August 20, 2017 — The Muscular Dystrophy Association is deeply saddened by the death of beloved comedian, performer, humanitarian and former MDA telethon star and national chairman Jerry ...

NEW YORK – Monday, January 27, 2025 – The Muscular Dystrophy Association (MDA) has selected Lily Sander from Charlotte, North Carolina, as its 2025 MDA National Ambassador. Sander joins MDA National ...

How are congenital myopathies diagnosed? Usually, diagnosis begins with evaluation of the patient’s personal and family history, and proceeds with physical and neurological examinations that test ...

Following the keynote address, Dr. Califf will participate in an expert panel discussing the evolving challenges in neuromuscular disease research and care, moderated by Sharon Hesterlee, PhD, Chief ...

We’re taking a big-picture approach to accelerating treatments and cures for muscular dystrophy, ALS and related diseases. We know breakthroughs don’t happen overnight and they don’t happen in silos.