Columnist Connie Chandler shares three things in her life with SMA that she thinks someone who might want to spend time with ...

Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.

This Halloween, an 11-year-old living with SMA named Dash will be trick-or-treating in a custom wheelchair costume inspired ...

Spinal muscular atrophy with respiratory distress type 1 (SMARD1 is a rare type of spinal muscular atrophy (SMA) that usually begins with breathing difficulties in infancy and progresses to muscle ...