Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Last Friday, my girlfriend, Amanda Yip, and I celebrated the ...

Mental health problems such as anxiety and depression are common for people with muscular dystrophy, affecting most individuals in the community, according to a new survey. The survey was carried out ...

Amid a big move, columnist Betty Vertin continued caring for her sons with DMD, but showed what not to do about taking care ...

Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google It seems to be a theme in our lives: Lifts and elevators work ...

DMD patients who switched to the experimental therapy deramiocel in a trial showed slower declines in upper limb function after the change.

For many people living with rare neuromuscular diseases, the most meaningful part of a recent Chicago gathering was not just the medical updates — it was finding a community that understood their ...

Last week, I traveled with my sons Max, Rowen, and Charlie to Colorado for their multidisciplinary neuromuscular clinic visit at a children’s hospital. My husband and I typically don’t both travel ...

A few days ago, my friend Reena Deen, a disabled independent filmmaker with complex post-traumatic stress disorder and dyslexia, shared with me that her film “The Damned Ones” was selected for the ...

A Phase 3 clinical trial testing delpacibart etedesiran (del-desiran), an experimental treatment for myotonic dystrophy type 1 (DM1), failed to hit its main goal. The Phase 3 HARBOR trial (NCT06411288 ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit When people hear the words “muscular dystrophy,” they often imagine everything a person has lost.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit I recently traveled with my family from Carrollton, Georgia, to the PPMD conference in Orlando, ...