Amid a big move, columnist Betty Vertin continued caring for her sons with DMD, but showed what not to do about taking care ...

Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.

Duchenne muscular dystrophy (DMD) is one of the most common types of inherited neuromuscular diseases, affecting about one in 3,500 boys. DMD’s progression is relatively rapid compared with other ...

DMD patients who switched to the experimental therapy deramiocel in a trial showed slower declines in upper limb function after the change.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Last week, I lost my dear friend Aloysius Teo, who passed away at ...

The U.S. Food and Drug Administration (FDA) has given the go-ahead for a mid-stage clinical trial testing the oral therapy forazapadin — designed to protect muscles and potentially enhance their ...

Oculopharyngeal muscular dystrophy (OPMD) is a rare inherited muscle disease that usually begins in adulthood. It commonly causes drooping eyelids and difficulty swallowing, followed by weakness ...

It’s been a big week for the Vertin Party of 9. We moved into our new home, and after only a week, the blessings seem boundless. I’m so thankful to share this because, as you can imagine, moving a ...

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My regular readers know that I love to play music. I’ve been performing nearly my entire life. Music began for me when I was 5 years old. My dad taught my brother, Tim, and me to play guitar and banjo ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit My name is Jake Levin. I am 23 years old, and I live with Duchenne muscular dystrophy. I graduated ...

Before my appointments at the National University Hospital in Singapore today, I still reflect on the years when my parents answered almost every question the doctor asked. It made sense. I was ...