Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.

Amid a big move, columnist Betty Vertin continued caring for her sons with DMD, but showed what not to do about taking care ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Last Friday, my girlfriend, Amanda Yip, and I celebrated the ...

Mental health problems such as anxiety and depression are common for people with muscular dystrophy, affecting most individuals in the community, according to a new survey. The survey was carried out ...

Recognized as the leading international meeting dedicated to neuromuscular diseases, the conference convenes renowned researchers, clinicians, affiliated health care providers, academicians, advocates ...

The MDA Berks Black-N-Blue Ball is a high-energy evening where bold style meets a powerful mission. Hosted at Classic Harley-Davidson, this unforgettable event brings together supporters, community ...

DMD patients who switched to the experimental therapy deramiocel in a trial showed slower declines in upper limb function after the change.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google It seems to be a theme in our lives: Lifts and elevators work ...

For many people living with rare neuromuscular diseases, the most meaningful part of a recent Chicago gathering was not just the medical updates — it was finding a community that understood their ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit My name is Jake Levin. I am 23 years old, and I live with Duchenne muscular dystrophy. I graduated ...

The U.S. Food and Drug Administration (FDA) has given the go-ahead for a mid-stage clinical trial testing the oral therapy forazapadin — designed to protect muscles and potentially enhance their ...