Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.

Amid a big move, columnist Betty Vertin continued caring for her sons with DMD, but showed what not to do about taking care ...

Recognized as the leading international meeting dedicated to neuromuscular diseases, the conference convenes renowned researchers, clinicians, affiliated health care providers, academicians, advocates ...

The MDA Berks Black-N-Blue Ball is a high-energy evening where bold style meets a powerful mission. Hosted at Classic Harley-Davidson, this unforgettable event brings together supporters, community ...

Navigating Duchenne muscular dystrophy (DMD) is a journey with challenges at every stage. From recognizing early signs to managing daily life, understanding genetics and heart health is key. With the ...

What is Amondys 45 for muscular dystrophy? Amondys 45 (casimersen) is an approved antisense oligonucleotide therapy for the treatment of Duchenne muscular dystrophy (DMD) in people with certain DMD ...

Extensive research is vital for improving and advancing knowledge about muscular dystrophy (MD). Clinical trials are research studies that evaluate the safety and effectiveness of medical devices, ...

Recognized as the leading international meeting dedicated to neuromuscular diseases, the conference convenes renowned researchers, clinicians, affiliated health care providers, academicians, advocates ...

Emery-Dreifuss muscular dystrophy (EDMD) is a rare group of genetic disorders that cause slowly progressive muscle weakness and joint contractures and can also affect the heart and, in some people, ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google On Feb. 19, my girlfriend, Amanda, and I presented at a seminar ...

Duchenne muscular dystrophy (DMD) is one of the most common types of inherited neuromuscular diseases, affecting about one in 3,500 boys. DMD’s progression is relatively rapid compared with other ...

Myotonic dystrophy type 2 (DM2) is a rare genetic condition caused by an unusually long stretch of repeated DNA letters in a gene called CNBP. This CNBP gene mutation leads to the production of ...