Columnist Connie Chandler shares three things in her life with SMA that she thinks someone who might want to spend time with ...

Connie Chandler is a Christ-focused care and support specialist at the nonprofit organization Joni and Friends. She grew up in the foothills of North Carolina but now owns a home and lives in Fort ...

Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.

This Halloween, an 11-year-old living with SMA named Dash will be trick-or-treating in a custom wheelchair costume inspired ...

England has launched SMA newborn screening in the West Midlands, marking the first step toward a nationwide NHS rollout.

The arrival of a new night weekend nurse has given columnist Ari Anderson reason to believe that he's now on the path of ...

In getting ready for the day, columnist Connie Chandler's caregiver helps her look good on the outside, but Connie's attitude ...

Scholar Rock is once again seeking approval in Europe for its muscle-strengthening drug for SMA, already launching in the U.S. as Isembyld.

Spinal muscular atrophy with respiratory distress type 1 (SMARD1 is a rare type of spinal muscular atrophy (SMA) that usually begins with breathing difficulties in infancy and progresses to muscle ...

There are several treatment options available for spinal muscular atrophy (SMA), a rare genetic condition characterized by progressive muscle weakness and wasting. The disease mainly affects motor ...

« MDA Toast to Life Gala – Orlando, FL 2026 Puerto Rico Muscle Walk » ...

Recognized as the leading international meeting dedicated to neuromuscular diseases, the conference convenes renowned researchers, clinicians, affiliated health care providers, academicians, advocates ...