Columnist Connie Chandler shares three things in her life with SMA that she thinks someone who might want to spend time with ...

Our online provider finder is designed to help spinal muscular atrophy (SMA) patients and caregivers find a specialist near them. Enter your information below to locate healthcare providers in your ...

Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.

This Halloween, an 11-year-old living with SMA named Dash will be trick-or-treating in a custom wheelchair costume inspired ...

England has launched SMA newborn screening in the West Midlands, marking the first step toward a nationwide NHS rollout.

Muscle regeneration, the benefits of a specialized diet, physiotherapy, and assistive technologies are among top priorities for spinal muscular atrophy (SMA) research identified by patients, ...

The arrival of a new night weekend nurse has given columnist Ari Anderson reason to believe that he's now on the path of ...

In getting ready for the day, columnist Connie Chandler's caregiver helps her look good on the outside, but Connie's attitude ...

Columnist Sherry Toh may be waiting to try Isembyld, but the new SMA treatment should still be made accessible quickly, she ...

Scholar Rock is once again seeking approval in Europe for its muscle-strengthening drug for SMA, already launching in the U.S. as Isembyld.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Children with symptomatic SMA experienced gains in motor function ...

Spinal muscular atrophy (SMA) is a rare genetic condition characterized by progressive muscle weakness and atrophy. It mainly affects motor function, but often also causes problems with speaking, ...