Case Western Reserve University

Cleveland research institutions present Ohio Rare Disease Day event to help 350 million affected by rare diseases worldwide

The Ohio Rare Action Network, an affiliate of the National Organization of Rare Disorders, with the Connor B. Judge Foundation and The Sumaira Foundation are bringing Ohio Rare Disease Day to ...
Infection control

From Uncertainty to Strategy: Guiding Vaccine Decisions in Rare Autoimmune Conditions

For Rare Disease Day and Week, ICT presents: Rare autoimmune diseases affect millions worldwide, yet vaccine guidance for these patients remains complex. Understanding disease mechanisms, ...
Medicine Buffalo

Diagnose earlier, treat smarter is focus of UB’s Rare Disease Day

Students, clinicians, researchers and advocates will gather at UB on Feb. 27 for Rare Disease Day, an event that aims to raise awareness about rare diseases through education, collaboration and ...
CNBC

Rare disease families find roadmap to drug development at bootcamps

Rare disease families are increasingly driving research efforts to find treatments for their children. Ultragenyx’s Rare Bootcamp gives advocates a roadmap for navigating drug development. The program ...